Patient Contributor

Kirsten Schultz

Kirsten Schultz is a writer from Wisconsin who challenges sexual and gender norms.

Overview

Living With Condition
25 Years
Published
6 Articles
Location
Madison, Wisconsin

Introduction

Through her work as a chronic illness and disability activist, she has a reputation for tearing down barriers while mindfully causing constructive trouble. She recently founded Chronic Sex, which openly discusses how illness and disability affect our relationships with ourselves and others, including — you guessed it — sex! You can learn more about Kirsten and Chronic Sex at chronicsex.org and follow her on Twitter.

 

Brief history with the conditions

 

"My asthma was diagnosed in 1993 when I fell ill with Systemic Juvenile Idiopathic Arthritis (SJIA). It has been mild for most of my life and only becomes a major issue when I'm exposed to certain triggers - especially heavy scents, cigarette smoke, and rapid temperature changes - or if I have an upper respiratory infection. Depression has been a nearly constant battle for me since childhood. I was seven the first time I began to contemplate suicide after struggling to get my SJIA diagnosed. For the bulk of my life, I assumed that death was close by. Because of that, I never really planned out a lot of my life. My husband - who also has depression - and I both struggle with planning, especially now that we're far older than the ages we assumed we'd live to be. Due to a lack of care in childhood, my depression wasn't diagnosed until I was out of college for a few years. 

 

In addition to asthma and depression, I also live with multiple chronic conditions, including: allergies, anterior basement membrane dystrophy, anxiety, chemical sensitivities, chronic pain, fibromyalgia, gluten intolerance, migraines, patellofemoral arthralgia, plaque psoriasis, PTSD, seborrheic keratosis, and systemic juvenile idiopathic arthritis/Still's Disease. I also struggle with a bulging disc at L5 S1, frozen shoulder, pelvic floor issues, and undiagnosed neurological issues."

Published Articles

HD, Me, and Rupee: Life with My New Service Dog
8 mins
article
Sarah Foster

HD, Me, and Rupee: Life with My New Service Dog

Tim’s Top Tips for Mental Resilience with Cystic Fibrosis
1 min 10 secs
video
Tim Wotton

Tim’s Top Tips for Mental Resilience with Cystic Fibrosis

Caregiver Time Management – Always a Work in Process
6 mins
article
Marc Lawrence

Caregiver Time Management – Always a Work in Process

The Problem with Not Talking about Heart Failure
7 mins
article
Rob Obey

The Problem with Not Talking about Heart Failure

“That's Not My Name”: 10 Disability Terms I Hate
6 mins
article
Laura McKee

“That's Not My Name”: 10 Disability Terms I Hate

Migraine and Brain Fog: 15 Tips to Beat the Brain Fuzz
10 mins
article
Laura McKee

Migraine and Brain Fog: 15 Tips to Beat the Brain Fuzz

How (and When!) to Say YES to Your Inner Child
3 mins
article
Sarah Bailey

How (and When!) to Say YES to Your Inner Child

What a Mental Health Re-Diagnosis Means to Me
4 mins
article
Sarah Bailey

What a Mental Health Re-Diagnosis Means to Me

5 Ways I Will Give My Heart a Fighting Chance
7 mins
article
Rob Obey

5 Ways I Will Give My Heart a Fighting Chance

Can Dogs Help with Stress and Anxiety?
4 mins
article
Claire Eastham

Can Dogs Help with Stress and Anxiety?

How I Learned to Stop Apologizing for My ADHD
5 mins
article
Megan Potts

How I Learned to Stop Apologizing for My ADHD

How “Same Thing, Different Day” Helps My Migraines
6 mins
article
Ciara O'Rourke

How “Same Thing, Different Day” Helps My Migraines

How I Stopped Migraine from Getting in the Way of My Career
6 mins
article
Ciara O'Rourke

How I Stopped Migraine from Getting in the Way of My Career

Skipping a Beat: Knowing When My Heart Needs TLC
3 mins
article
Willeke van Eeckhoutte

Skipping a Beat: Knowing When My Heart Needs TLC

How I Use Self-Care with MS to Help Stave off Depression
4 mins
article
Kat Naish

How I Use Self-Care with MS to Help Stave off Depression

Why We Need to Say STOP to Social Media Scare Tactics
7 mins
article
Martin Gallagher

Why We Need to Say STOP to Social Media Scare Tactics

Connect with Kirsten Schultz