Patient Contributor

Kirsten Schultz

Kirsten Schultz is a writer from Wisconsin who challenges sexual and gender norms.

Overview

Living With Condition
25 Years
Published
6 Articles
Location
Madison, Wisconsin

Introduction

Through her work as a chronic illness and disability activist, she has a reputation for tearing down barriers while mindfully causing constructive trouble. She recently founded Chronic Sex, which openly discusses how illness and disability affect our relationships with ourselves and others, including — you guessed it — sex! You can learn more about Kirsten and Chronic Sex at chronicsex.org and follow her on Twitter.

 

Brief history with the conditions

 

"My asthma was diagnosed in 1993 when I fell ill with Systemic Juvenile Idiopathic Arthritis (SJIA). It has been mild for most of my life and only becomes a major issue when I'm exposed to certain triggers - especially heavy scents, cigarette smoke, and rapid temperature changes - or if I have an upper respiratory infection. Depression has been a nearly constant battle for me since childhood. I was seven the first time I began to contemplate suicide after struggling to get my SJIA diagnosed. For the bulk of my life, I assumed that death was close by. Because of that, I never really planned out a lot of my life. My husband - who also has depression - and I both struggle with planning, especially now that we're far older than the ages we assumed we'd live to be. Due to a lack of care in childhood, my depression wasn't diagnosed until I was out of college for a few years. 

 

In addition to asthma and depression, I also live with multiple chronic conditions, including: allergies, anterior basement membrane dystrophy, anxiety, chemical sensitivities, chronic pain, fibromyalgia, gluten intolerance, migraines, patellofemoral arthralgia, plaque psoriasis, PTSD, seborrheic keratosis, and systemic juvenile idiopathic arthritis/Still's Disease. I also struggle with a bulging disc at L5 S1, frozen shoulder, pelvic floor issues, and undiagnosed neurological issues."

Published Articles

5 Mid-Year Goals for a Happier Life with Asthma
7 mins
article
Beki Tovey

5 Mid-Year Goals for a Happier Life with Asthma

Staring Parrots and Wobbly Alpacas: Finding Peace with HD
5 mins
article
Sarah Foster

Staring Parrots and Wobbly Alpacas: Finding Peace with HD

How to Manage Photophobia and Migraine at Home and Work
3 mins
article
Sarah Rathsack

How to Manage Photophobia and Migraine at Home and Work

The Caregiver's Stress Triad: Fear, Fatigue, and Failure
7 mins
article
Marc Lawrence

The Caregiver's Stress Triad: Fear, Fatigue, and Failure

When Asthma and Wanderlust Go Head to Head
5 mins
article
Cróna Tansey

When Asthma and Wanderlust Go Head to Head

6 Tips for Dating with Social Anxiety
4 mins
article
Claire Eastham

6 Tips for Dating with Social Anxiety

How My Children Feel about Family Life with a Chronically Ill Parent
12 mins
article
Laura McKee

How My Children Feel about Family Life with a Chronically Ill Parent

Coming to Terms with Chronic Illness as a Family
10 mins
article
Laura McKee

Coming to Terms with Chronic Illness as a Family

Chronic Illness and the Pandemic: How Did Some of Us Cope?
10 mins
article
Laura McKee

Chronic Illness and the Pandemic: How Did Some of Us Cope?

Social Anxiety at Work? Do These 4 Things
7 mins
article
Claire Eastham

Social Anxiety at Work? Do These 4 Things

5 Tips for Better Asthma Control
4 mins
article
John Bottrell

5 Tips for Better Asthma Control

4 Ways to Help a Loved One with Asthma
5 mins
article
Kamilah Howard

4 Ways to Help a Loved One with Asthma

8 Tips to Help Your Kids with Asthma “Fit in”
4 mins
article
John Bottrell

8 Tips to Help Your Kids with Asthma “Fit in”

Cancer, Telling It Like It Is, and Marrying Jon Hamm
48 mins 46 secs
podcast

Cancer, Telling It Like It Is, and Marrying Jon Hamm

PCPs are Human Too: When Doctors Get Cancer
51 mins 23 secs
podcast

PCPs are Human Too: When Doctors Get Cancer

Life Beyond Cancer: The AfterThoughts Wrap-Up Episode
43 mins 30 secs
podcast

Life Beyond Cancer: The AfterThoughts Wrap-Up Episode

Connect with Kirsten Schultz