Patient Contributor

Kirsten Schultz

Kirsten Schultz is a writer from Wisconsin who challenges sexual and gender norms.

Overview

Living With Condition
25 Years
Published
6 Articles
Location
Madison, Wisconsin

Introduction

Through her work as a chronic illness and disability activist, she has a reputation for tearing down barriers while mindfully causing constructive trouble. She recently founded Chronic Sex, which openly discusses how illness and disability affect our relationships with ourselves and others, including — you guessed it — sex! You can learn more about Kirsten and Chronic Sex at chronicsex.org and follow her on Twitter.

 

Brief history with the conditions

 

"My asthma was diagnosed in 1993 when I fell ill with Systemic Juvenile Idiopathic Arthritis (SJIA). It has been mild for most of my life and only becomes a major issue when I'm exposed to certain triggers - especially heavy scents, cigarette smoke, and rapid temperature changes - or if I have an upper respiratory infection. Depression has been a nearly constant battle for me since childhood. I was seven the first time I began to contemplate suicide after struggling to get my SJIA diagnosed. For the bulk of my life, I assumed that death was close by. Because of that, I never really planned out a lot of my life. My husband - who also has depression - and I both struggle with planning, especially now that we're far older than the ages we assumed we'd live to be. Due to a lack of care in childhood, my depression wasn't diagnosed until I was out of college for a few years. 

 

In addition to asthma and depression, I also live with multiple chronic conditions, including: allergies, anterior basement membrane dystrophy, anxiety, chemical sensitivities, chronic pain, fibromyalgia, gluten intolerance, migraines, patellofemoral arthralgia, plaque psoriasis, PTSD, seborrheic keratosis, and systemic juvenile idiopathic arthritis/Still's Disease. I also struggle with a bulging disc at L5 S1, frozen shoulder, pelvic floor issues, and undiagnosed neurological issues."

Published Articles

5 Ways to Find Hope with Huntington's Disease
3 mins
article
Sarah Foster

5 Ways to Find Hope with Huntington's Disease

7 Ways to Keep Caregiving When Your Loved One Gets Angry
5 mins
article
Susanne White

7 Ways to Keep Caregiving When Your Loved One Gets Angry

My Mom Had Chronic Migraine... Now I Do Too
6 mins
article
Sarah Alexander-Georgeson

My Mom Had Chronic Migraine... Now I Do Too

A Letter to Myself: 5 Years After My Cancer Diagnosis
4 mins
article
Alice-May Purkiss

A Letter to Myself: 5 Years After My Cancer Diagnosis

Living Life to the Fullest with Huntington’s Disease
4 mins
article
Arthur Lazarev

Living Life to the Fullest with Huntington’s Disease

How to Stay Active at Home with MS
59 secs
video
Trishna Bharadia

How to Stay Active at Home with MS

When Someone You Love Forgets Your Name
3 mins
article
Susanne White

When Someone You Love Forgets Your Name

4 Tips to Avoid Control Issues as a Caregiver
5 mins
article
Marc Lawrence

4 Tips to Avoid Control Issues as a Caregiver

When Someone You Love Forgets Your Name
3 mins
article
Susanne White

When Someone You Love Forgets Your Name

The Recharging Power of Routines to Manage Depression and Anxiety
3 mins
article
Bryce Evans

The Recharging Power of Routines to Manage Depression and Anxiety

How Caregiving Forced Me to Redefine Friendship
6 mins
article
Teena Gates

How Caregiving Forced Me to Redefine Friendship

How to Manage Anger and Guilt as a Caregiver
4 mins
article
Susanne White

How to Manage Anger and Guilt as a Caregiver

Connecting with the World, Despite Depression
5 mins
article
Bryce Evans

Connecting with the World, Despite Depression

Opening Up about Mental Health and Psychotherapy
3 mins
article
Bryce Evans

Opening Up about Mental Health and Psychotherapy

“Are You Okay?” 3 Communication Tips for Caregivers
3 mins
article
Marc Lawrence

“Are You Okay?” 3 Communication Tips for Caregivers

How Cancer Changed Me as a Person
5 mins
article
Alice-May Purkiss

How Cancer Changed Me as a Person

Connect with Kirsten Schultz